Amyloidosis Care Coordinator

Job Title : Amyloidosis Care Coordinator

Grade Code : 3070

Reference No : 06.029(2025)

Department / Directorate : Medical Directorate

Reports to : Clinical Lead / Co Lead on the Rare Disease Programme of work & to The Director of Nursing / HSCP Manager as appropriate

Tallaght University Hospital (TUH) is a model 4, voluntary, academic teaching hospital partnered with Trinity College and situated in south west Dublin. With a staff of over 4,000 people from 63 different countries, it provides both acute and tertiary care to an increasing population of circa 800,000 people and is a provider of local, regional and national specialties. It is also a National Urology Centre, the second largest provider of dialysis services in the country, Pelvic and Acetabulum National Centre and a designated Trauma Unit.

The Hospital is part of the newly established HSE Dublin & Midlands Region, which serves a population of over 1.2 million across seven counties, and operates under the governance of an independent Board of Directors who give their time on a voluntary basis. TUH is also supported by the Adelaide Health Foundation, the Meath Foundation and Tallaght University Hospital Foundation.

TUH recognises the role it plays in our community both as an employer and provider of healthcare and is committed to building a sustainable future for our region both now and into the future with a focus on patient outcomes.

The Hospital is ambitious, recognising that healthcare delivery is undergoing seismic change and will be different now and into the future, largely due to digital and technological advances along with research continuing to discover and test new treatment options. TUH wants to be a leader in determining that future. It is a “Hospital without Walls” always looking to optimise care both within and beyond in line with the Sláintecare vision of providing the right care, in the right place, at the right time whilst empowering our patients and staff.

TUH Vision and Values

The vision of the Hospital is “People Caring for People to Live Better Lives” through excellent health outcomes supported by evidenced based practice, positive patient and staff experience in an empowering and caring environment. A culture of innovation and quality improvement in everything we do.

Our TUH CARE values – for patients, their families, our community and staff are :

• C ollaborate – together and with our academic and care partners
• A chieve – our goals, positive outcomes and wellbeing
• R espect – for patients, each other and our environment
• E quity – for patients and staff
• Co-ordinate patients' care plans across cross-sectoral specialties and disciplines, in particular across the Irish Expert Amyloidosis Network
• Establish and support the development of agreed amyloidosis referral pathways and processes across both acute and community-based settings
• Provide specialist support, information and liaison services to patients / families and carers
• Participate in the development and implementation of amyloidosis care pathways in collaboration with patient organisations and multidisciplinary stakeholders, and the National Rare Diseases Office (as required)
• Coordinate and actively participate in multidisciplinary team meetings, including development of standardised templates for documentation

ERN Coordination and Support

Education and Awareness

Psychosocial Support

Quality and Improvement

GENERAL ACCOUNTABILITY :

QUALIFICATIONS / EXPERIENCE REQUIRED :

Must Have Criteria :

Desirable criteria :

REWARD & RECOGNITION :